Endo in adolescents

Adolescents can be affected by endometriosis. In fact, according to American College of Obstetricians and Gynecologists: “Endometriosis is the leading cause of secondary dysmenorrhea in adolescents. Endometriosis should be considered in patients with persistent, clinically significant dysmenorrhea despite treatment with hormonal agents and NSAIDs, particularly if no other etiology for chronic…

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Blood tests for endometriosis- not yet

We hear more and more about blood tests using DNA, RNA, and microRNA being researched as a possible way to help diagnose endometriosis. While more studies are needed, these tests do show some promise (Zafari et al., 2021). It would be nice to be a able to get a simple blood test and know that you probably have endometriosis and be able to plan accordingly. As Fassbender et al. (2015) states: “The…

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Curcumin’s effect on endometriosis

Endometriosis is an inflammatory disorder, and inflammation can lead to increased pain, fatigue, and general feelings of unwellness (Nothnick & Alali, 2016). It has been shown that “endometriotic lesion removal significantly alters the inflammatory profile both locally and systemically in women with endometriosis” (Monsanto et al., 2016). While some of us work on achieving that expert excision of…

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Hysterectomy and endometriosis

A hysterectomy is not a cure for endometriosis; however, many people with endometriosis also experience problems with their uterus or ovaries (such as adenomyosis, fibroids, ovarian cysts, and other conditions that can contribute to chronic pelvic pain) that could benefit from removal of the uterus and/or ovaries. For example, adenomyosis and endometriosis have been found together anywhere from 21.

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Endometriosis: Impact on Work

We see time and again the impact the symptoms of endometriosis have on daily life. Regarding work and productivity, researchers found that people with endometriosis reported “17.1% of work time missed, 41.8% impaired work ability, 46.5% overall work impairment, and 41.4% activity impairment” with the greatest effect of fatigue and productivity impairment on those in their 30’s (Soliman et al.

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Finding an endometriosis specialist

Endometriosis often requires specialized care. Just as there are specialists such as endocrinologists, oncologists, rheumatologists, cardiovascular surgeons, orthopedic surgeons, and so on, there are specialists for endometriosis. Even within those specialties, there are subspecialties for even more specific disease processes. However, finding those elusive providers can be difficult.

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Excited and grateful / heureux et reconnaissants

We are excited and grateful to announce that the website is being translated into French! This is due to the generous donation of time and effort from Chloé Moulin. She has shared her story of why this work is important to her (see below in both French and English!). Although Chloé is donating her work, our technical team will be working on setting up the website to accommodate a translated…

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Pelvic Congestion Syndrome- another cause of chronic pelvic pain

When talking about endometriosis and chronic pelvic pain, it is important to remember that often endometriosis is not the only pelvic pain generator. Another possible contributor to chronic pelvic pain is pelvic congestion syndrome (PCS). PCS is like having varicose veins in the pelvis. Blood pulls in the veins and can cause symptoms such as heaviness, pain with penetration, noncyclical pain…

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Reaching out to teach another…including our providers

Our motto “reaching out to teach another” can also include our providers. Just as someone might see a specialist for neurological or endocrine disorders, endometriosis often requires specialized care (even for therapies such as physical therapy). And just as with seeing any other specialist, communicating what their care has been to other providers is important. This can better enable those…

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Genes associated with endometriosis

It’s an exciting title: “Genetic cause of endometriosis discovered, pointing to new drug therapy” (Haridy, 2021). But it is misleading. When you look further, it reveals it is referencing a study (Tapmeier et al., 2020) that identified “a novel genetic variant that is associated with severe cases of endometriosis” (Haridy, 2021). The article further states that “NPSR1 mutations have never before…

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